Some days are faced with heavy hearts.
One of my daughter's has been officially diagnosed with Tourette's syndrome. Even thought this is something we were kind clued into from early on, we kind of skirted around the issue for a long time. Recently,we needed to bite the bullet so she can get what she needs in school. To finally hear the official diagnosis is something that makes my chest just a bit heavy.
Today was just a bit hard.
She's one of the main reasons that I have gone so into left field with organic/non-toxic living. There is so much about life I can't control for my children, that feeding them good food, and giving them a safe place to be is something I can control.
To me food is like medicine, and the fact that people are messing with it really upsets me, because it affects my children. And that it's not so accessible and expensive doesn't make me happy either.
Along with the organic food, we've had her on a modified diet for a while. I think it has helped her immensely( organic food, no artificial dyes, preservatives,additives, high magnesium, balanced omega's). But it still breaks me to my core when I face up the reality of what faces her in life. And even though nothing is going to change with what we do for her, there's still a piece of me that wishes it were different.
Maybe it's more selfish on my part because it's just not what I want for her.
I know my kids are going to have challenges in life, I just don't want them starting from behind.
The thing is, she is really smart and funny, and bright.
But also just a bit difficult as well. She doesn't have what you would think Tourette's is... the classic shouting swear words and uncontrolled uncensored thoughts that they show in movies. It is classified in a tic disorder spectrum, and for her, it manifests as eye rolling, throat clearing, grimacing and a few other motor/vocal things. We already have her in OT which has helped a lot, but it's a long road. We've been told many times it's genetic and not caused by anything outside, they think, but that doesn't stop me from thinking back to my pregnancy and wondering if I should have done something differently; You know that classic mother's guilt.
I keep reminding myself that it's not a terminal thing and tons of people have this, and their lives are very happy and very normal. But, even though there's many things we are doing for her, there is nothing as a mother I can do to take it away.
So for me the journey for cleaner and purer living is so much more that buying into the hype. When I read studies that there is a direct link to pesticides and ADHD, I really sit up and take notice. Today was one of those days that really affirms that I am taking the right road for the right reasons.